van der Slot and colleagues assessed participation and health-related quality of life in adults with bilateral spastic cerebral palsy, and explore associations with self-efficacy. The cross-sectional study enrolled a sample of 56 adults with bilateral spastic cerebral palsy (mean age 36.4 years; 62% male). Daily activities and social participation (Life Habits 3.0), health-related quality of life (SF-36 Health Survey), demographic and clinical characteristics, and self-efficacy (General Self-Efficacy Scale (GSES-12)) were assessed. Associations were studied using multivariate logistic regression analyses. At least 60% of the sample had difficulties with mobility, recreation and housing, and 44% had difficulty with personal care and employment. They perceived low health-related quality of life for physical functions, but not for mental functions. Corrected for demographic and clinical characteristics, general self-efficacy explained 49% of the variance in outcome on social participation, and the subscale Effort (GSES-12) 32% of the variance for the physical health-related quality of life and 16% of the mental health-related quality of life.

WHAT THE STUDY MAY MEAN TO YOU AS A HEALTH CARE PROVIDER: A significant number of adults with bilateral spastic cerebral palsy encountered difficulties in social participation and had a low perceived health-related quality of life for physical functions. Higher general self-efficacy or a greater willingness to expend effort in achieving behavior was related to better participation and a higher physical and mental health-related quality of life.

WHAT THE STUDY MAY MEAN TO YOU AS A HEALTH CARE CONSUMER: The study should be systematically replicated as a part of a comprehensive self-management program. It would be invaluable information to see how participation in such a program would affect many of the outcome variables, including self-efficacy.

WM van der Slot, et al. Participation and health-related quality of life in adults with spastic bilateral cerebral palsy and the role of self-efficacy. Journal of Rehabilitation Medicine, 2010;42:528-535.